I am on the honorary board along with Scott Hamilton, Sean Astin, Mickey Dolenz, Rita Moreno, Pat McCormick, Kim Alexis and more ~ COME TO THE GHOSTLY GALA FOR FSH! OCT. 30 AT THE CICADA CLUB ~ FSHD is the most prevalent of the nine primary types of muscular dystrophy affecting adults and children. It is a genetic disorder. New York Times article describes the landmark discovery of the genetic mechanism of FSHD: Reanimated ‘Junk’ DNA Is Found to Cause Disease."
- FSHD is the most prevalent of the nine primary types of muscular dystrophy affecting adults and children. It is a genetic disorder.
- New York Times article describes the landmark discovery of the genetic mechanism of FSHD: Reanimated ‘Junk’ DNA Is Found to Cause Disease."
- FSHD gets its name because of the type of progressive loss of all skeletal muscle, where weakness is usually noticeable across facial (facio), back (scapula) and upper arm (humeral) muscles.
- Previously, studies estimated the prevalence at around 1 in 20,000 people, but a 2014 Dutch study reported a much higher prevalence of 1 in 8,333.
- Facioscapulohumeral muscular dystrophy (FSHD) is broadly characterized as a neuromuscular disease (NMD), as are all types of muscular dystrophy. Muscular dystrophies are marked by progressive skeletal muscle weakness, defects in the biochemical, physical, and structural components of muscle, and the death of muscle cells and tissue. FSHD gets its name because the progressive loss of skeletal muscle is usually noticeable across facial (facio), back (scapula), and upper arm (humeral) muscles. The hip girdle and legs can also be affected in many patients. Muscle weakness often sets in asymmetrically, affecting only one arm or one leg, for example, and as a result may be mistakenly attributed to strain or a sports injury. Symptoms may manifest early, sometimes years before a formal diagnosis.
- https://www.fshsociety.org/honorary-board/
Sean Astin is best known for his leading role in the feature film series Lord of the Rings, but you may have also seen him in Goonies, Rudy, Encino Man, Toy Soldiers, White Water Summer, and many more films. His voice can be heard in cartoons such as Special Agent Oso and Teenage Mutant Ninja Turtles. Recently, his television series roles include 24, Jeremiah, Monk, Law & Order, NCIS, and more.
Lydia Cornell is best known as the star of the hit ABC series Too Close for Comfort as Emmy legend Ted Knight’s daughter ‘Sara.’ An international star of over 250 TV shows and films in 27 countries, Lydia received the Southern California Motion Picture Council’s Golden Halo Lifetime Achievement Award in 2014. She also directed the SAG film “It’s My Decision” nominated for best film in several film festivals. One of TV’s most popular sex symbols, she is now a writer, director, mother, comedienne, talk show host, women and children’s advocate, teen mentor and inspirational public speaker.
Micky Dolenz was one of the stars and a lead singer for the iconic television show, The Monkees. He has appeared on numerous other shows including Peyton Place, Circus Boy, The Secret Files of the Spy Dogs, and The Tick.
Brain Goodell won two gold medals at age 17 for swimming in the 1976 Olympics and set world records in each. He won three gold medals for swimming in the 1979 Pan American Games. He graduated from UCLA in 1982 having won nine NCAA titles and 10 U.S. National Championships. In 1986 he was inducted into the International Swimming Hall of Fame, the Orange County Sports Hall of Fame in 1984, and the UCLA Hall of Fame in 1991.
Scott Hamilton is one of the most popular skating stars in the world today. He is an Olympic Gold Medalist, TV skating commentator, actor, performer, producer, Emmy Award nominee, best-selling author, role model, humanitarian, philanthropist, and a cancer and brain tumor survivor.
Richard Karn is famous for his role as Al on the long-running series Home Improvement. He has also appeared on the series CTRL, That 70’s Show, and Boy Meets World. He was the host of Bingo America as well as Family Feud, one of the most famous game shows in television history.
